Patients advise on a cancer study
Here at the IRB, we see a fair number of social/behavioral studies that are designed with the help of community advisory boards or other representatives of the intended study population. However, that kind of patient involvement seems to be more rare in clinical studies, at least the ones we see. The NCI-MATCH study, per one news article, is a good case study of how patient input can make research more acceptable to potential subjects. Take a look at the link and see if there are ways we can incorporate the patient perspective into the study development process.